Entitlement – Rights to benefits specified by law or contract.
A Government program providing benefits to members of a specified group; also: funds supporting or distrubted by such a program.
Recently (last night) I wrote a blog about how I will take advantage of what my son can get such as programs, medical waivers and other known things that us in the autism community or the special needs community in general sometimes get. So here is my follow-up to that…why am I doing a follow-up? Because I think people get the wrong idea about special needs parents that say things like, “I will take whatever I can get to help my child.” I think they think I am saying, “I will take and take and take money from you, while I don’t take care of my child and use everything for myself and I can get more free stuff!” Tell that stupid voice in your head to F&ck off! I am beyond pissed that people think that it isn’t fair for my son to get services/government assistance! That is NONSENSE! That is STUPIDITY! That is just well…idiotic! My husband works hard just like anyone else, I am not taking hand outs and I don’t cheat the system. If it is offered than I will take it. It is that simple! He is entitled to it and he deserves it!
The following was from the website http://www.ssa.gov/pubs/10026.html
Your child must meet all of the following requirements to be considered disabled and therefore eligible for SSI:
The child must not be working and earning more than $1,010 a month in 2012. (This earnings amount usually changes every year.) If he or she is working and earning that much money, we will find that your child is not disabled.
The child must have a physical or mental condition, or a combination of conditions, that results in “marked and severe functional limitations.” This means that the condition(s) must very seriously limit your child’s activities.
The child’s condition(s) must have been disabling, or be expected to be disabling, for at least 12 months; or must be expected to result in death.
If your child’s condition(s) results in “marked and severe functional limitations” for at least 12 continuous months, we will find that your child is disabled. But if it does not result in those limitations, or does not result in those limitations for at least 12 months, we will find that your child is not disabled
Employment for young people with disabilities-
We have many ways to encourage young people who are receiving SSI payments or SSDI benefits and who want to go to work.
When we figure your child’s monthly SSI payment, we do not count most of your child’s income. If your child is younger than age 22 and a student who regularly attends school, we exclude even more of his or her earnings each month. In 2012, disabled students younger than age 22 may exclude $1,700 of their monthly earnings, with an annual limit of $6,840, when counting their income for SSI purposes. These limits may increase each year.
With a Plan to Achieve Self-Support (PASS), a child who is age 15 or older can save some income and resources to pay for education and other things needed to be able to work. We do not count the saved income when we figure your child’s income for SSI purposes. We do not count the saved income and resources when we figure the amount of your child’s payment.
Because of a medical condition(s), your child may need certain items and services in order to work, such as a wheelchair or a personal assistant. When figuring your child’s SSI payment, we will not count some or all of the amount paid for these items and services in your child’s earnings.
Your child older than age 15 may get help with rehabilitation and training.
Medicaid coverage will continue even if your child’s earnings are high enough to stop the monthly SSI payment as long as the earnings are under a certain amount.
An adult disabled before age 22 can get the same help with work expenses explained above for an SSI child, and help with rehabilitation and training.
Cash benefits may continue until the individual can work on a regular basis.
Medicare may continue for up to 93 months (seven years, nine months).
Medicaid is a health care program for people with low incomes and limited resources. In most states, children who get SSI payments qualify for Medicaid. In many states, Medicaid comes automatically with SSI eligibility. In other states, you must sign up for it. And some children can get Medicaid coverage even if they do not qualify for SSI. Check with your local Social Security office, your state Medicaid agency, or your state or county social services office for more information.
Medicare is a federal health insurance program for people age 65 or older and for people who have been getting Social Security disability benefits for at least two years.
There are two exceptions to this rule. Your child can get Medicare immediately if he or she:
Has a chronic renal disease and needs a kidney transplant or maintenance dialysis; or
Has Lou Gehrig’s disease (amyotrophic lateral sclerosis).
Other health care services-
When your child gets SSI, we will refer you to places where you can get health care services for your child. These services are under the Children with Special Health Care Needs provision of the Social Security Act. These programs are usually managed by state health agencies.
States call these services by many different names, including Children’s Special Health Services, Children’s Medical Services and Handicapped Children’s Program. Most programs provide services through clinics, private offices, hospital-based outpatient and inpatient treatment centers, or community agencies.
Even if your child does not get SSI, one of these programs may be able to help you. Local health departments, social service offices, or hospitals should be able to help you contact your local Children with Special Health Care Needs program.
If you have read ANY of this, what does this tell you? My child is entitled to any and all of this, including state programs that we qualify for. This isn’t “living off the government.” This is my child getting what he is entitled to. I am not popping out kids left and right and expecting people to pay for things for my children. While I do nothing and sit on my ass. My husband has worked hard at his job to provide for my son and I. We do have insurance through his work, but insurance won’t cover everything of course and luckily he gets therapy through the state (for now). These things aren’t food stamps that I am trading someone an iPhone for. I am not cheating the system to get things so I don’t have to work. I am not getting things from other people because I don’t feel like doing anything. I am not a worthless mother. I am a mother of an autistic child and these are things my son gets because he deserves them. People who do not understand and do not agree are either people with children that have no disability or people who do not have children at all. Why don’t you go to work when you have only slept 3 or 4 hours or better yet NOT AT ALL and see how you will survive the day. You deal with multiple meltdowns and sensory overload a day and do housework (I can’t imagine doing school work too). You pay for different sensory toys/items such as weighted blankets and weighted vests that might not even help, but you buy them. You buy them to help him. Help him rest and help him calm down to learn. And then a year later you buy another one because he is too big for the old one. Things like iPads to help him learn and maybe one day talk. And then you replace that iPad when it breaks and then you replace it over and over after that. You replace it because you want him/her to succeed. And this is another thing that will help. So you will continue to replace it, every. single. time.
Here is an idea for anyone who doesn’t agree with these services and the entitlement my son has, shut the hell up! This isn’t depending on the government, this isn’t asking for people to give me things and this isn’t being greedy. This is things he is entitled to. Our children all have futures and my son shouldn’t sit on the side line because of his autism. He should strive and these things are there to make him be more than we can ever imagine. I am not asking for anyone to pay for his things. I am not relying on the government to give ME anything. I am asking for my son to get the things he is entitled to. Why? Because he deserves it and it is his right! His right because of his disability, because of his autism, because he has a different way of thinking than other children. Services are there for a reason. I think people decide to see what they want to see. They assume that if someone takes advantage in the wrong way of some type of government help tha everyone does. Get your head out of your ass! Not everyone who getting some type of government assistance is abusing it. That is not how it works. This is entitlement, not living off the government. Roosevelt said, “We may not be able to prepare the future for our children, but we can at least prepare our children for the future.” When he said this, he said ALL children. Not just some. These things are helping him because he is not just 1 in 88, he is part of the thousands and millions of children on this Earth. I am preparing my child for the future. Doesn’t he deserve a chance? Doesn’t he deserve more? If your answer to those two questions are no, than don’t have children. Don’t have children because obviously you are going to have conditional love for your child, unlike myself who loves my child unconditionally no matter what. And that unconditional love is why I was blessed with an autistic child.
More Information/Laws for children/adults of special needs –
https://www.firstsigns.org/treatment/EI.htm -Early intervention